RESOURCES FOR THE JOURNEY
Tools and Knowledge for the Road Ahead
Helpful Links
The right information can help you feel more prepared for the road ahead. Puzzled Butterfly is developing practical resources to help Pathfinders learn, prepare, and navigate life with greater ease.
This resource page provides trusted, up to date links for individuals living with lupus, chronic illness pathfinders, caregivers, family members, friends, and healthcare professionals. These organizations offer support, education, financial assistance, and guidance for navigating chronic illness.
Drug Assistance Programs
These programs help individuals access prescription medications, co?pay assistance, and financial support.
Health Insurance
Medicaid is available only to certain low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Medicaid does not pay money to you; instead, it sends payments directly to your health care providers. Medicaid is a state administered program and each state sets its own guidelines regarding eligibility and services. To help determine if you are eligible for a variety of governmental programs, please visit Benefits.gov and BenefitsCheckUp.org websites.
Caregivers and Families
Health Related Organizations
- American Autoimmune Related Diseases Association
- American Behcet’s Disease Association
- Academy of Nutrition and Dietetics
- American Chronic Pain Association
- American Sleep Apnea Association
- APS Foundation of America
- Arthritis Foundation
- The Myositis Association
- National Association of Hospital Hospitality Houses
- National Kidney Foundation
- National Sleep Foundation
- The Raynaud’s Association
- Scleroderma Foundation
- Sjogren’s Syndrome Foundation
- Vasculitis Foundation
Employment and Disability
The Americans with Disabilities Act gives civil rights protections to individuals with disabilities similar to those provided to individuals on the basis of race, color, sex, national origin, age, and religion. It guarantees equal opportunity for individuals with disabilities in public accommodations, employment, transportation, State and local government services, and telecommunications.
Americans With Disabilities Act
The Council for Disability Rights
Disability Rights Education & Defense Fund
Provides information about legal protections, rights and obligations for people with disabilities.
A to Z Disabilities and Accommodations
Additional Resources
Be prepared when traveling
Medications when traveling Internationally
Vaccines, Medicines, Advice
Web sites for Foreign Embassies in the U.S.
Disclaimer
These links are provided as a public service. Their inclusion does not imply endorsement or support of any program, organization, or viewpoint. Puzzled Butterfly is not responsible for the content, accuracy, or updates of external websites.