Helpful Links

lupus 1

There are many different aspects to lupus and this section seeks to provide links to websites that cover a variety of topics. These sites will be of interest to those who are diagnosed with lupus, caregivers, family members, friends and healthcare professionals.

Disclaimer: These links are provided as a public service. Providing these links does not imply endorsement or support of any program or organization. Puzzled Butterfly is not responsible for the content of the pages to which links are provided.

 

Drug Assistance Programs

The Abbott Patient Assistance Program (PAP) provides Abbott medications, at no cost, to patients in financial need.

Too many people today have to choose between their medicines and other life necessities. If this describes you, or someone you care for, you’ve come to the right place. Access2wellness is designed to assist people with limited or no health insurance get the help they need to lead healthier lives.

The Benlysta® Co-pay assistance program is for people who have commercial insurance (not a state, federal, or government health insurance plan like Medicare or Medicaid), or whose insurance does not provide coverage for BENLYSTA, and meet other eligibility requirements. 1-877-423-6597

GoodDays is a non-profit, full service financial and medication assistance organization. We exist to improve the health and quality of life of patients battling chronic disease, cancer or other life-altering conditions who cannot afford the medications they so desperately need.

A co-pay relief program to assist insured Americans who medically and financially qualify.

Lilly Company index of all company programs to assist patients with prescription drug costs

GlaxoSmithKline’s patient assistance program for non-oncology medicines, provides GSK prescription medicines to eligible low-income patients without prescription drug benefits

Map Rx is a is a coalition of patient, family caregiver and health professional organizations committed to safeguarding the well-being of patients with chronic diseases and disabilities under Medicare Prescription Drug Coverage.

NeedyMeds, a 501 (c) (3) nonprofit organization, is a comprehensive resource for people who need help paying for health care and prescription medication costs.

Novartis Pharmaceuticals Corporation’s Patient Assistance Program (PAP) provides assistance to patients experiencing financial hardship who have no third party insurance coverage for their medicines

Brings together Americas pharmaceutical companies, doctors and other health care providers and community groups to help those who lack prescription coverage get the medicines they need through the pubic or private program that is right for them.

Offers a comprehensive database of assistance programs.

The only assistance program Internet initiative financially supported by PhRMA and participating pharmaceutical companies.

The Healthwell Foundation® is a 501(c)(3) non-profit organization established in 2003 that is committed to addressing the needs of individuals with insurance who cannot afford their co-payments, coinsurance, and premiums for important medical treatments.

Has a free prescription savings card for eligible residents of the US and Puerto Rico who have no prescription drug coverage.

 

HEALTH INSURANCE

The Patient Protection and Affordable Care Act, otherwise known as Obama-care, or the Affordable Care Act (ACA) was passed by Congress and reviewed by the United States Supreme Court and is now the law. As a result, many more millions of people in America will be covered by health insurance and have access to improved health care.

 

For people with chronic illnesses, such as lupus, this legislation is especially helpful, as now no one can now be denied health insurance coverage due to a pre-existing condition like lupus, treatment for a chronic condition must be covered and life time caps on coverage are now gone.

Protects and improves the portability and continuity of health insurance coverage and requires that most health plans provide coverage for pre-existing medical conditions after 12 months.

Medicaid is available only to certain low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Medicaid does not pay money to you; instead, it sends payments directly to your health care providers. Medicaid is a state administered program and each state sets its own guidelines regarding eligibility and services. To help determine if you are eligible for a variety of governmental programs, please visit Benefits.gov and BenefitsCheckUp.org websites.

A federal insurance program that pays for medical care for people who qualify.

Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

 

CAREGIVER AND FAMILIES

 

HEALTH RELATED ORGANIZATIONS

 

EMPLOYMENT AND DISABILITY

Americans With Disabilities Act

The Americans with Disabilities Act gives civil rights protections to individuals with disabilities similar to those provided to individuals on the basis of race, color, sex, national origin, age, and religion. It guarantees equal opportunity for individuals with disabilities in public accommodations, employment, transportation, State and local government services, and telecommunications.

The Council for Disability Rights

Disability Rights Education & Defense Fund

Works to advance the civil and human rights of people with disabilities through legal advocacy, training, and education.

FindLaw

Provides information about legal protections, rights and obligations for people with disabilities.

Job Accommodation Network

The JAN is a free consulting service designed to increase the employability of people with disabilities.

National Institute on Disability and Rehabilitation Research

The National Institute on Disability and Rehabilitation Research (NIDRR) provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. All of their programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood.

Patient Advocate Foundation

Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

 

ADDITIONAL RESOURCES

Traveler’s Checklist

Be prepared when traveling

MedicAlert Advantage

Our dedication to safeguarding your health in the event of an emergency expands beyond our borders into more than 50 countries, and translation services are available in 140 languages. MedicAlert Foundation is there for you, wherever you may be..

Mobility International USA

Medications when traveling Internationally

Travelers Health – CDC

Vaccines, Medicines, Advice

Foreign Embassies

Web sites for Foreign Embassies in the U.S.

 

 

 

 

 

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